H3Africa Spotlights

19 results - showing 6 - 10

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Fiona

Fiona

Fiona is currently the Study Coordinator for Deciphering Developmental Disorders in Africa (DDD-Africa) – Evaluating Clinical Exome Sequencing in an African Setting. She holds a PhD in Human Genetics and is a Medical Scientist registered with the Health Professions Council of South Africa. The DDD-Africa project is based in Johannesburg, South Africa with a secondary recruitment site in Kinshasa, Democratic Republic of Congo.

Fiona is originally from Uganda and has lived and worked in South Africa for over 10 years. Her PhD research at the University of Cape Town and the University of British Columbia focused on Huntington disease in an African population. She joined the Division of Human Genetics at Wits University as a postdoctoral fellow in 2015 to further her research interests in Huntington disease and its phenocopies. Subsequently, she worked on the genetics of breast cancer in African women and then joined the DDD-Africa team in 2018. As study coordinator, she took on a management role and helped to establish many project processes over a two-year period. She has overseen everything project-related, from clinical enrolment of patients and families to finances.

In 2020, Fiona will focus on her position as Medical Scientist at the Division of Human Genetics, University of the Witwatersrand and the National Health Laboratory Service. Her duties as Study Coordinator have officially been handed over in this month of September and it is with gratitude to the H3A Consortium and the Study Coordinators’ working group in particular, that she wishes you all the very best.

Isabella Rockson

Isabella Rockson

Isabella Rockson has worked in the area of health systems and reproductive health for over 15 years specializing in program development, administration, Management, monitoring and evaluation,
Isabella is the Study Coordinator/Grants Administrator for the H3Africa Kidney Disease Research Network made up of investigators based at 13 institutions in five African countries (Ghana, Cameroon, Tanzania, Nigeria and South Africa) with supportive partnership and complimentary expertise from seven institutions in the USA and Canada. The H3Africa Kidney Disease Research Network has recruited over 8,000 subjects with chronic kidney disease (CKD) and controls into its research studies. Currently, the team is working on a renewal study to advance the understanding of the causes of CKD in patients with human immunodeficiency virus infection, children with nephrotic syndrome and patients with sickle cell disease. These research findings it is believed will also lay the foundation upon which to develop new treatments and strategies to prevent CKD.
On these studies, I am primarily responsible for coordinating award management activities including communicating with funders, setting up agreements, ensuring IRBs and MTA’s are processed and renewed annually, ensuring reports are submitted timely and reporting back to partners and funders on a timely basis.
Isabella holds a Master of Science degree in Project Management from the University of Aberdeen in Scotland, a Post Graduate Diploma in Public Administration from the Ghana Institute of Management and Public Administration (GIMPA) and has a Diploma in Journalism.
She is currently a Research Development Officer with the Pre and Post Award Services team of the University of Ghana at the Korle Bu satellite Office where she provides research support services to Faculty for both internally and externally funded grants.
Before joining the University, Isabella worked on a number of donor funded projects in different project management capacities where she was involved in the planning, designing, implementation, directing and monitoring of project related activities.

Keofentse Mathuba

Keofentse Mathuba

Study Coordinator Working Group Co-Chairperson: Keofentse Mathuba is a Nurse/Midwife working with Botswana-Baylor Children’s Clinical Centre of Excellence as study coordinator for the CAFGEN study. After working for 20 years in several departments in Government sector, she was assigned to join Prof. Gabriel Anabwani as Research Coordinator in 2000 and it formed the basis for her experience and the initial learning experience in coordinating a trial. Currently, she is coordinating the Collaborative African Genomic Network (CAfGEN) study since its inception in 2014, which its aim is look at the host genetic factors that influence the progression of HIV and TB in children.
Her duties as a study coordinator is multi-tasking and includes; maintaining the Study Master Files, assist in the monitoring and auditing of the study, processing and facilitates IRB approvals, coordinating participant recruitment process in the clinic, translating consent and assent forms, training other study staff members about the protocol and procedures, preparing and submitting study progress reports, collaborating with internal and external stakeholders.
She has benefited a lot on job training and acquired more knowledge and skills by coordinating several studies, reading research related materials, online training and attending most of the H3Africa consortium meetings. These meetings were/are beneficial because they formed a platform for formal training, guidance, interaction and collaboration with study experts.

Lebogang Montewa

Lebogang Montewa

Lebogang Montewa is a Coordinator for IFGeneRA project under the umbrella of GeneMAP. Her previous role at the South African Medical Research Council has involved capacity development and training for researchers in South Africa where she developed a strong interest for science communication. She has worked in the NGO sector in the East, West and central Africa to advance collaboration of communities and the health facilities for best practices in Paediatric HIV management and service uptake. This advanced her passion for community engagement.
She is also pursuing her PhD to create an evidence base about engagement practices for ethical dialogues in genomics research and her project aims to explore effective ways of fostering ethical dialogues in genomics research using theory-driven and creative approaches to evaluate effective engagement practices to engage research participants. Her passion for Science communication has advanced her interest to explore film making to shine a light on the amazing research work done in Africa. Her proposal to the UCT film school was among the top 5 selected to be produced into a mini documentary for GeneMAP in 2018. She is the content producer for h3Africa promotional video documentary released earlier this year. Outside this scope Lebogang is passionate about Gardening and exploring new places.

Nadja Louw

Nadja

Nadja is currently the Study Coordinator for Deciphering Developmental Disorders in Africa (DDD-Africa) – Evaluating Clinical Exome Sequencing in an African Setting. The DDD-Africa project is based in Johannesburg, South Africa with a secondary recruitment site in Kinshasa, Democratic Republic of Congo. The project focuses on identifying possible genetic factors that cause developmental disorders in Africans.

She is based at the University of Witwatersrand in Johannesburg although having completed her MSc Human Genetics at the University of Pretoria. Her MSc was focused on Paraganglioma in the Afrikaner population and was titled “The First SDHB Founder Mutation Identified In South African Paraganglioma Families”. Previous research experience includes breast – and ovarian cancer, especially in the Afrikaner population. Preceding her role as study coordinator, she was employed as the research assistant for the DDD-Africa project.

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